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Development, Reliability, and Validity of the Alberta Perinatal Stroke Project Parental Outcome Measure

  • Taryn B. Bemister
    Affiliations
    Department of Psychology, University of Calgary, Calgary, Alberta, Canada

    Alberta Children's Hospital Research Institute, University of Calgary, Calgary, Alberta, Canada
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  • Brian L. Brooks
    Affiliations
    Alberta Children's Hospital Research Institute, University of Calgary, Calgary, Alberta, Canada

    Neurosciences (Brain Injury and Rehabilitation Programs), Alberta Children's Hospital, Calgary, Alberta, Canada

    Department of Paediatrics, University of Calgary, Calgary, Alberta, Canada

    Department of Clinical Neurosciences, University of Calgary, Calgary, Alberta, Canada
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  • Adam Kirton
    Correspondence
    Communications should be addressed to: Dr. Kirton; Section of Neurology; Alberta Children's Hospital; Room C1-320, 2888 Shaganappi Trail NW; Calgary, Alberta, Canada. T3B 6A8
    Affiliations
    Alberta Children's Hospital Research Institute, University of Calgary, Calgary, Alberta, Canada

    Department of Paediatrics, University of Calgary, Calgary, Alberta, Canada

    Department of Clinical Neurosciences, University of Calgary, Calgary, Alberta, Canada

    Calgary Pediatric Stroke Program, Calgary, Alberta, Canada
    Search for articles by this author

      Abstract

      Background

      Perinatal stroke is a leading cause of cerebral palsy and lifelong disability, although parent and family outcomes have not yet been studied in this specific population. The Alberta Perinatal Stroke Project Parental Outcome Measure was developed as a 26-item questionnaire on the impact of perinatal stroke on parents and families.

      Methods

      The items were derived from expert opinion and scientific literature on issues salient to parents of children with perinatal stroke, including guilt and blame, which are not well captured in existing measures of family impact. Data were collected from 82 mothers and 28 fathers who completed the Parental Outcome Measure and related questionnaires (mean age, 39.5 years; mean child age, 7.4 years). Analyses examined the Parental Outcome Measure's internal consistency, test-retest reliability, validity, and factor structure.

      Results

      The Parental Outcome Measure demonstrated three unique theoretical constructs: Psychosocial Impact, Guilt, and Blame. The Parental Outcome Measure has excellent internal consistency (Cronbach α = 0.91) and very good test-retest reliability more than 2-5 weeks (r = 0.87). Regarding validity, the Parental Outcome Measure is sensitive to condition severity, accounts for additional variance in parent outcomes, and strongly correlates with measures of anxiety, depression, stress, quality of life, family functioning, and parent adjustment.

      Conclusions

      The Parental Outcome Measure contributes to the literature as the first brief measure of family impact designed for parents of children with perinatal stroke.

      Keywords

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