Abstract
Background
Perinatal stroke is a leading cause of cerebral palsy and lifelong disability, although
parent and family outcomes have not yet been studied in this specific population.
The Alberta Perinatal Stroke Project Parental Outcome Measure was developed as a 26-item
questionnaire on the impact of perinatal stroke on parents and families.
Methods
The items were derived from expert opinion and scientific literature on issues salient
to parents of children with perinatal stroke, including guilt and blame, which are
not well captured in existing measures of family impact. Data were collected from
82 mothers and 28 fathers who completed the Parental Outcome Measure and related questionnaires
(mean age, 39.5 years; mean child age, 7.4 years). Analyses examined the Parental
Outcome Measure's internal consistency, test-retest reliability, validity, and factor
structure.
Results
The Parental Outcome Measure demonstrated three unique theoretical constructs: Psychosocial
Impact, Guilt, and Blame. The Parental Outcome Measure has excellent internal consistency
(Cronbach α = 0.91) and very good test-retest reliability more than 2-5 weeks (r = 0.87). Regarding validity, the Parental Outcome Measure is sensitive to condition
severity, accounts for additional variance in parent outcomes, and strongly correlates
with measures of anxiety, depression, stress, quality of life, family functioning,
and parent adjustment.
Conclusions
The Parental Outcome Measure contributes to the literature as the first brief measure
of family impact designed for parents of children with perinatal stroke.
Keywords
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Article info
Publication history
Published online: April 07, 2014
Accepted:
January 28,
2014
Received:
November 3,
2013
Identification
Copyright
© 2014 Elsevier Inc. Published by Elsevier Inc. All rights reserved.
